Category - Rebecca Copens

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Purely Patrick: Supported Employment Helps an Entrepreneur Succeed
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Improving Heart Health, One Step at a Time
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The Developing Brain

Purely Patrick: Supported Employment Helps an Entrepreneur Succeed

By: Rebecca Copans

Patrick and his sister Deseray Lewis sell Purely Patrick goods at Art on Park in Stowe

 

If you wander down Stowe’s Park Street on a summer Thursday evening, you are sure to find a colorful tent filled with specialty food items made and packaged by Patrick Lewis, the entrepreneur behind Purely Patrick.

A vivacious person who sings through his days, Patrick was born with Cerebral Palsy. His parents, Mary Anne and George Lewis, helped Patrick utilize his repetitive hand motions to build a specialty food business. He sells glass Ball jars and plastic water bottles (which are easier to ship) filled to the brim with beautiful dried ingredients like birdseed, recipes for dog treats, sweets like cookies and brownies, savory recipes like soup and cornbread, as well as a number of gluten-free recipes.

Along with his parents, George and Mary Anne Lewis, Patrick is supported by his sister, Deseray, and two LCMHS Developmental Services Supported Employment Staff, Carrie Cota and Miranda Maxham. Carrie has been with Patrick for seven years, and Miranda has been with him for three. Strong relationships and job retention are incredibly important here.

Patrick participated in the Race for Sensory Drive in May with his mother and sister, Mary Anne and Deseray Lewis.

 

“I wouldn’t trade [Carrie and Miranda] for the world. Not just anyone can do this job,” Mary Anne says. The rapport among them is obvious.

“Miranda is the numbers girl, and I handle the technical side of the business, including developing and maintaining the website,” Carrie says.

“Carrie is my techie,” Mary Anne jokes, “and Miranda is a worker bee—they both are!—but Miranda is never afraid of using her muscles. For example, she brings many jars from the Hardware store in for Patrick after his shopping trips. She carries a ton of Patrick’s groceries in at the same time. She is always moving, and very efficient. She is even insured to drive the big lift van and does so willingly and safely.”

Developing the business-side of Purely Patrick has been a learning process. Working with his strengths, over time they developed a concept for creating products that capitalize on Patrick’s repetitive hand movements and that avoid hand-over-hand motions that are difficult for a person who is blind. His Supported Employment staff helps Patrick to ensure that measurements are accurate. But “if there is anything in one of those jars, it’s because he put it there,” Carrie says.

Mary Anne agrees. “It’s not about us doing it, it’s purely Patrick!”

The team tracks Purely Patrick sales—from farmers markets and craft shows to internet sales—and their hottest market is sales from the family-owned Brass Lantern Inn in Stowe. The relationship is mutual. The innkeepers sell a number of Vermont products, from tea to maple syrup, “but the thing we sell the most of out there is Patrick’s products,” says Mary Anne.

When buying the specialty food products, many people don’t realize that Patrick is the innkeepers’ son. It creates a positive awareness of the abilities of an individual with a disability. Even though sales aren’t always robust at some community events, there is value in Patrick’s presence there. “He has some very loyal repeat customers over the years that come to Art on Park year after year,” Carrie says.

Mary Anne agrees. “I see it as a bigger picture; it is exponential networking and I feel that it’s wholesome disability awareness. I can’t tell you how many moms and dads have come up to us and said, ‘I had no idea that a Patrick could be employed.’ It’s inspiring for families of people living with a disability to see the incredible potential in every individual.”

 


Rebecca Copans has worked extensively in government affairs, public relations and communications. As a society, our greatest potential lies with our children. With this basic tenant firmly in mind, Rebecca worked most recently with the Permanent Fund for Vermont’s Children and now with Lamoille County Mental Health to secure a stronger foundation for all Vermont families. 

A graduate of the University of Vermont and Dartmouth College, Rebecca holds a bachelor’s degree in political science and a master’s degree in globalization. Her thesis concentration was the history and societal use of language and its effect on early cognitive development. She lives in Montpelier with her husband and three children.

 

Improving Heart Health, One Step at a Time

Keeping your heart healthy may seem like a big job, but even small changes in your daily habits can make a big difference. In fact, small changes are much easier to integrate into our lives than larger ones, so they’re more likely to become lasting habits.

In honor of American Heart Month, we asked our Live Well Lamoille bloggers to share one simple thing they do to keep their heart healthy. We hope this list provides inspiration for incorporating heart-healthy behaviors into your life.

Steve Ames: To be honest, I try to run up the stairs as often as possible, and skip elevators or so escalators whenever possible.

Mary L. Collins: I have begun a practice of going to sleep while listening to meditative music. It may seem an odd way to be heart healthy but for me, as I age, I find sleeping is one of the areas I can easily attenuate to be healthier.  So, I listen to music that helps me fall asleep. It softly plays on my nightstand at a very, very low volume.  I can barely hear it but it is just enough “there” so that I am soothed into sleep. Think of it as “Lullabies for Adults”.  Works for me and is completely natural.

Rebecca Copans: Each week I try to take a brisk walk on five days and go to at least one yoga or other exercise class. I find that if I set a goal of trying to eat 5 different colors of fruit and vegetables each day it helps me to eat more fresh foods.

Rorie Dunphey: I take a 30-minute walk during my lunch hour.

Caleb Magoon: I love to drink a cold beer or two once in a while. But boy those calories add up! I have a simple rule I follow: Sweat before you drink. I allow myself the indulgence, but only on days when I am sure to get a little exercise.

Todd Thomas: I religiously check my Fitbit each day to ensure that I get my steps in. I have always been told that 10,000 steps a day makes for an active and healthy lifestyle. My personal goal is to get to 14,000 steps a day. I chose to walk to and from work (and to and from the house for my lunch-break) to help meet my daily goal. If I achieve that daily goal, that gets me to 100,000 steps per week. My body always feels great when I achieve 100,000 steps weekly!

Nancy Wagner: I love to snowshoe with my dog. She’s right there waiting and ready when I get home from work. I have a headlamp and we go out back in the woods.

Michele Whitmore: I exercise regularly and play tennis three times a week. Playing tennis has many health benefits including increasing aerobic capacities. lowering resting heart rate and blood pressure. Additionally, in 2016 there was a study done involving numerous exercises and sports that increase one’s lifespan, tennis was ranked in the top two. This research report also stated that playing a racquet sport, such as tennis, was linked to a 47% reduced risk of death. (More information here.)

Valerie Valcour: I do Tai Chi for 20-30 minutes five mornings a week. It helps ground me and gets my heart rate up just enough to get going.

What is one thing YOU do to be heart healthy?  Let us know in the comments section below!

The Developing Brain

By: Rebecca Copans

Lucy, 3 years old, heading to her first day of preschool.

As a parent, you want nothing more than for your child to be happy and healthy, to make friends, and to be accepted and integrated with their peers. When one of those pieces doesn’t fall into place as you would hope, you start asking questions.  You talk to your friends and neighbors, you ask for help from your primary care provider, and you call Lamoille County Mental Health Services.

From when she was a toddler, my daughter Lucy struggled with communicating her needs in a socially acceptable way.  As an infant, we taught her baby sign language and she was incredibly proficient in verbal language at an early age. Also from a young age, however, she was paralyzed by social pressures and extreme shyness. When she was three and entered preschool, it didn’t go well. A brand new teacher fresh out of college combined with some energetic kids is a recipe for chaos. Sprinkle in social, emotional and behavioral challenges, and it can be a recipe for disaster.

It all came to a head when we were invited to a birthday party in March, seven months into the program and I saw firsthand what she had been trying to tell me week after week. She would come home and say, “No one played with me today.” Or, “I don’t have any friends at school.”  Impossible, I thought. This is preschool, where they learn to be friends and care about each other equally—right? Wrong. It was like watching a car wreck. I was rooted to the spot, transfixed as parents chatted around me, oblivious to the scene that our children were playing out with each other. There were leaders and followers, cliques and bullying, and passive-aggressive exclusion that was closer to how seventh-grade girls infamously treat each other. This was a 4-year old’s birthday party. I was shocked. I have never felt so acutely that I failed as a parent. I didn’t listen to this tiny little person tell me over and over that she needed help figuring out how to navigate an incredibly stressful situation. It was like a language that everyone else could speak but her.

We asked for advice, I cried a whole lot, and ultimately we changed schools. Within three weeks of being enrolled in her new school, her teachers surged to action. We created a plan and began pulling in an incredible array of wrap-around services.They suggested screenings and behavioral interventions and within months and with some incredible people in her corner, things began slowly to improve, tiny step by tiny step.

From under a porch chair “fort”, 5 year old Lucy weaves a story for her brother Hazen.

Lucy, who suffers from a heady mix of debilitating shyness, ADHD and learning disabilities, was taught to scaffold mental prompts that allow most children seemingly automatically to wait for a turn at the paper towel dispenser (rather than pushing past to avoid having to think of something to say—and then say it—to the child blocking her way), to wait quietly in line to go outside for recess, to ask a teacher for help navigating a problem, or, the Everest: to ask “can I play?” Working with the behavioral interventionist, we created a playbook so that her family and her teachers were all working from the same place and using the same language.

Those early interventions helped to rewire her brain. She was given the tools to ask with her words rather than by hurling her body through space, and was able to integrate gracefully into playing with her peers by having a coach whispering prompts in her ear. As those prompts become ingrained, and with her incredible early educators mimicking the behavior interventionist’s language, the social fabric of her life became more normalized. By the time she entered Kindergarten, that coach standing by her shoulder was no longer needed, and in fact, her problem-solving skills became tools that her Kindergarten peers learned from Lucy.

When Lucy was a toddler, we thought that her actions were simply normal—we had nothing to compare it to. We thought parenting was simply the hardest job on the planet and didn’t realize how much help was available in the community. I didn’t know that our designated mental health agency or our local parent-child center offered resources for someone with Lucy’s developmental challenges, and for us, as parents raising her. I had the misconception that those agencies were reserved only for low-income Vermonters. We had no idea where to turn and grew increasingly panicked.

Studies from the Center on the Developing Child at Harvard University have shown that in the first years of life, a developing brain forms one million connections every second. By the age of by the age of five, 90% of the brain is developed. If we had waited until Lucy reached Kindergarten before putting behavior interventions in place, the work in bending her trajectory would have become much more difficult.

Lucy is far from alone on her path. A 2015 VT Digger story noted,

“Vermont has the highest rate of identifying students with emotional disturbance in the country. As a percentage of all students who received special education services in the 2012-13 school year in Vermont, about 16 percent were identified with an emotional disturbance, according to federal data. That is more than twice the national average of 6.3 percent.”

Some experts have argued that Vermont is simply doing a better job than other states at early identification and intervention.

During the 2016-2017 School Year, the School-Based Clinician Program at Lamoille County Mental Health supported over 120 children like Lucy from preschool-age to high school seniors. These dedicated individuals provided individual, group, and team support for students in their learning environments. School-Based Clinicians teach and practice mindfulness techniques with children, organize running and fitness groups, support skill development in the areas of self-advocacy, self-regulation, identifying and verbalizing emotional states, peer conflict resolution, verbal and non-verbal communication, and development of reciprocal play skills. They also facilitate training sessions for an increase in trauma-informed approaches in schools. These services are now available in 12 schools with a potential to serve over 200 children in the Lamoille Valley.

The Redwood Program at LCMHS contracts with school districts to offer wrap-around, full-year behavioral interventions for children. The children engaged in the program during the school year then attend a six-week summer camp that has precipitously lowered the crisis rate for kids returning to school in the fall. The Redwood Summer Camp is free for students enrolled in the Redwood Program and prevents a lot of kids from needing more expensive therapies. It maintains structure for the children during the summer and builds and strengthens the relationships between the kids and the incredible cohort of behavioral interventionists.

At 7 years old, Lucy is thriving with school-based supports.

The Access Program at LCMHS offers Community Skills Work (CSW), allowing children to connect with this service when in crisis. At its peak this year, the CSW Program served approximately 60 children at one time. In addition to weekly visits with children, the program also supports activities such as Wellness Camp, Children’s Emotional Wellness Day and the Resource Parent Curriculum Plus (RPC+) Children’s Group—an incredible program that supports placement stability for children in foster care. The CSW Program is connected with several local organizations, offering access to activities such as swimming, ice skating, gyms, game rooms, and State Parks.

During that first year of preschool, I was sure that Lucy would never be able to succeed socially in school.  Now as a second grader, she has wonderful friends, she is successful in dance and gymnastics, she is able to have playdates that don’t reliably devolve into tears, and on any given day a stranger in the grocery store wouldn’t know the challenges she faces—all things that would have seemed impossible four years ago. Without those early interventions, this trajectory would be heading in a very different direction. When parents are at a loss as to how to help their child, they need to know that they aren’t alone and that help can be found right here in Lamoille. Parenting is hard in the best of situations and if you are struggling, some days it just feels impossible. Support is just right down the street. If you or someone you know could use some help with a child who is struggling, don’t wait until it’s a crisis to ask for help.

If you or a child you know needs help, call Lamoille County Mental Health at (802) 888-5026 or visit www.lamoille.org.


Rebecca Copans has worked extensively in government affairs, public relations and communications. As a society, our greatest potential lies with our children. With this basic tenant firmly in mind, Rebecca worked most recently with the Permanent Fund for Vermont’s Children and now with Lamoille County Mental Health to secure a stronger foundation for all Vermont families. 

A graduate of the University of Vermont and Dartmouth College, Rebecca holds a bachelor’s degree in political science and a master’s degree in globalization. Her thesis concentration was the history and societal use of language and its effect on early cognitive development. She lives in Montpelier with her husband and three children.